Participate!
We are looking for study volunteers with a medical history of cleft lip and/or cleft palate, their parents, and any other affected family members, for a research study about genes that may contribute to clefting. Participation includes online surveys about family and medical history and DNA testing. Local participants will have photos taken. Volunteers will be compensated for their participation.
What is a research study?
The main purpose of research studies is to gain knowledge. This knowledge may be used to help others. Research studies are not intended to benefit you directly, though some might.
How do I sign up for a study?
Contact the study staff to let them know you are interested. You will be given documents that describe the study risks, and procedures. These documents will also describe how your health information will be used and by whom. Review these documents and ask questions of the study staff. In addition to answering your questions, the study staff may ask you some questions to make sure that the study is a good fit for you and/or your child. It is important that you read all documents provided, ask questions of the study staff, and take time to carefully consider whether the study is right for you.
What are the benefits?
This study is designed to learn more about the genetics of Orofacial Clefting and craniofacial differences. The study results may be used to help others in the future by improving diagnosis or treatment for such conditions.
Interested? Fill out our online screening survey.
If you would like to participate in our study, please use the link below to fill out our short online screening survey. Once we have reviewed your responses and confirmed your eligibility, a member of our study team will contact you with enrollment information and next steps for participation. You may also download a copy of our consent form to review prior to participation.
If you would like more information or have questions about the study, please contact us by email at cleftproject@emory.edu or by phone at 404-727-2825.
EMORY IRB# 00105750